who needs love when there's law and order?
Linkage: T-Mobile customers outraged
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1. The illness I live with is: Fibromyalgia
2. I was diagnosed with it in the year: 2006
3. But I had symptoms since: 2004
4. The biggest adjustment I’ve had to make is: physical activity, socialization
5. Most people assume: I'm just blind
6. The hardest part about mornings are: getting my body working, lifting the fog
7. My favorite medical TV show is: Does Dead Like Me count?
8. A gadget I couldn’t live without is: my cell phone - it's my memory
9. The hardest part about nights are: having enough energy to pack lunch, do chores around the house and play with the dog
10. Each day I take __ pills & vitamins: I only take an anti-depressant; I have anti-anxiety meds as needed and I take ibuprofen often
11. Regarding alternative treatments I: have done my own research and made my own choices
12. If I had to choose between an invisible illness or visible I would choose: I have both, they both suck
13. Regarding working and career: I work full time, just finished a Master's program and will continue to do schoolwork. It's a lot of energy and I feel drained most of the time.....I can't afford not to.
14. People would be surprised to know: I'm in constant pain
15. The hardest thing to accept about my new reality has been: the way people view/possibly view and/or treat me. I'm not incapable and ignorant.
16. Something I never thought I could do with my illness that I did was: finish my master's
17. The commercials about my illness: involve middle-aged women talking about joint pain. I'm young - this affects everyone!
18. Something I really miss doing since I was diagnosed is: The diagnosis wasn't pivotal in initializing self-care, in fact I was already stopping things to avoid pain. I miss being treated seriously and not as a drug-seeker by doctors though...
19. It was really hard to have to give up: my humanity
20. A new hobby I have taken up since my diagnosis is: I haven't really taken up a new hobby, life stays the same!
21. If I could have one day of feeling normal again I would: jog
22. My illness has taught me: that my body is fragile, all bodies are fragile, and we have to take really good care and listen to what our bodies tell us
23. Want to know a secret? One thing people say that gets under my skin is: "How bad is your pain?" instead of asking if I want to do something.....let me decide, don't ask about pain levels!
24. But I love it when people: accept my slower pace or brain fog
25. My favorite motto, scripture, quote that gets me through tough times is: just keep swimming....
26. When someone is diagnosed I’d like to tell them: just keep swimming....
27. Something that has surprised me about living with an illness is: the degree of misinformation and assumptions out in the world
28. The nicest thing someone did for me when I wasn’t feeling well was: hear me and bring me helpful things and then let me be
29. I’m involved with Invisible Illness Week because: it's important to spread awareness about chronic, invisible illnesses - we are all over the place, not some goofy commercial and still contribute to the world in our own ways...
30. The fact that you read this list makes me feel: m'eh.
Taken From National Invisible Chronic Illness Week
Kate Clinton Closes a Chapter of CNW
For our very last author event of this CNW era, we couldn't have asked for a better, smarter, funnier woman than the iconic Kate Clinton.
Clinton's new book, I Told You So, spans refreshingly disparate topics: sexual hypocrisy and gay marriage; 9/11 and its aftermath; girls gone wild and boys gone to war; Hillary Clinton and U.S. politics; baptism and waterboarding; intelligent design and body shows; P-town and families of choice; and even bee colony and other collapses. What unites the essays is a Mobius strip of humor intended not to dissipate outrage but rather to motivate action.
FREE! Wednesday, May 27 @ 6:00PM - Brattle Theater, 40 Brattle Street, Cambridge. Co-presented with Harvard Book Store.
COME TO THIS - I'm going to make a facebook invite.
Last CNW author reading ever!
xoxo
etana
TranScriptions
featuring Raven Kaldera
Thursday, May 14; doors @ 7:15
Spontaneous Celebrations, 45 Danforth St, JP
$5-10 at the door, cash only please!
TranScriptions is Boston's newest queer-themed open mic night.
Featuring poets, writers, musicians, performers, activists, and YOUR
creative expression of all kinds, TranScriptions is a radically
inclusive space and always welcomes allies.
Our May feature, Raven Kaldera, is a shaman, FTM intersex activist,
homesteader, astrologer, author, pervert, and general
boundary-crosser. He is a founding member of the First Kingdom Church
of Asphodel, and the author of too many books to list here, including
Hermaphrodeities: The Transgender Spirituality Workbook and Dark Moon
Rising: Pagan BDSM and the Ordeal Path. He is the co-editor of Best
Transgender Erotica. 'Tis an ill wind that blows no minds.
Don't miss our pride event June 11 featuring the Femme Show!
Some Satisfied, others outraged with verdict for immigrant's death.
article here
It wasn't the smell necessarily, the cured meat steaming
or the beans melting on tongue twisted into
words fell onto pavement like jalapeno
my eyes watering, it was all I could do
first fists balled tight, then feet steel toed
pounding down upon you
until red, the color of my flag
flowing
covering
smearing
the stain of you on my arms glistening
until panting I reached down and squeezed -
your neck now like bread braiding
properly, I'm
reforming
reshaping
reconstituting
you walked easily, too comfortable
like gaucamole I preferred you smashed and covered
my mouth now smiling, my belly full
I've consumed and conquered
I've paid a small fee
to exit satiated